Southern Ocean County Community Rushes To Help Lily Rose A Little Egg Harbor 5 Year Old Battling Can

Dated: 02/10/2015

Views: 2620

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It must have been difficult for Lily Rose Cramer and her family to have a Merry Christmas. But the Cramers sure have had, in one respect at least, a Happy New Year.

The 5-year-old Little Egg Harbor resident was diagnosed at the Children’s Hospital of Philadelphia as having aggressive Stage 4 neuroblastoma, a childhood cancer, which had already spread to the bone marrow. On Christmas Eve!

She already had a tumor removed from her abdomen on Dec. 23. Now she’s in line for four months of grueling chemotherapy, with a week in the hospital followed by three weeks of recovery at home each time. It started at the end of December.

That means her dad Charlie and/or her mom Sandi will be driving back and forth to Philly, an hour-and-a-half trip each way, every day for a week at a time. Sandi had to quit her job – at least for four months. They have to take care of Lily Rose’s brothers as well, 8-year-old Caine and 3-year-old Darren. Needless to say, the family will be suffering from financial stress as well as physical and emotional exhaustion.

So how could it have possibly been a Happy New Year for the Cramers? Well, they know they’re not going through this alone. The community quickly banded together to give the family a hand.

On Saturday, Jan. 24 the men of Tuckerton’s Improved Order of Red Men and the women of its associated women’s auxiliary, the Degree of Pocahontas, hosted a benefit spaghetti dinner for Lily Rose and her family. They ended up selling over 700 tickets for the dinner, at $10 a pop, and raised a few thousand dollars more with auctions and donation cans. The place was packed, with automobiles filling not only their parking lot but the adjacent county parking lot as well.

On Sunday, March 1 Little Egg Harbor’s American Legion Post 493, located at 420 Radio Road, will jump onboard the effort, staging a “Love for Lily Band Jam” from 1 to 6 p.m. Entertainers will include Billy Walton, Jimmy Brogan, Brandon Ireland, Fred Conley, 40 North, the Impulsives, Smokey Starr, Off Their Rocker, the Mott’s Creek Pickers and the Small Wood Brothers. There will also be a Chinese auction, an antique car show, a bake sale, a 50/50, and door prizes on top of fire truck rides, face painting and the Fun Bus of Ocean County. All of the proceeds will be donated to the Cramer family. Tickets are $10 for adults and $5 for children and may be purchased in advance at the legion hall or at the door.

There are other ways to help the Cramer family in the meantime.

Tuckerton’s Eric Amato was on the case as soon as he heard about Lily Rose’s distress, creating a GoFundMe fundraising campaign on Dec. 26 (GoFundMe is a San Diego-based company founded in 2010 that is the world’s largest fundraising site for personal causes such as raising money to pay for a trip to a foreign country to provide humanitarian assistance, or to deal with life-events such as that of the Cramer family. Go to to donate and to for further information about the company). Amato set a goal of $20,000. As of Tuesday, Feb. 3, $16,480 had been donated.

A medical fund has also been established. Checks can be made out payable to The Lily Rose Cramer Fund, C/O Jamie Driscoll, 245 Center St., Tuckerton, NJ 08087.

Lily Rose’s progress can be followed on Facebook.

So the winter hasn’t been as bad as it could have been for the Cramers. Hopefully the spring will be even brighter.

Courtesy of— Rick Mellerup

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Kim Pileggi

Greetings from Long Beach Island! I am a full time real estate agent specializing in LBI sales and summer rentals, servicing all of LBI and the surrounding mainland communities. I have earned several ....

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